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My Story

My name is Jorie,

September 27th is my 22nd birthday and I have been living with type 1 diabetes since the age of 4. It used to be so easy when I was young but when I turned 13 everything changed. I became inattentive to my diabetic needs and just wanted to be like every other person in the world and not have to count and track and watch. So I ended up in the hospital the same time every year for the next 6 years of my life with.... you guessed it DKA. my levels were well over 600 and my A1C was above 14. I just didn't care, I didn't want every meal planned out for me n having to be dependent on a medication to live. The doctors told me if I didn't start taking care of myself I would start losing my sight, having kidney failure, etc. Finally, in 2012 I met the love of my life and he didn't only give me a purpose he gave me goals and a chance at a normal person's future. After we got together and I started taking better care of myself I found out I had diabetic retinopathy. I was devastated. It was like no matter how hard I tried there my diabetes was to tear me down. I don't have it completely under control I still have old habits but I'm trying to be as healthy as I can so I can have kids and a future without disability or blindness. I have come a long way but I still have so long to go. I just got my pump in the mail and now I have to go and train for using it. I'm so excited and can't wait to see what my future holds.

Jorie
West Branch, MI

My Fight with Diabetes

Hi I'm Chloe, I'm 17 and have Type 1 diabetes for 10 years, it has been a struggle. I developed diabetes when I was nearly 8 years old not long after I had my Pacemaker for my heart fitted. I nearly didn't make it as I had ketonacidousis before I was diagnosed. I have always hated diabetes. I ve struggled with it throughout my life as I just want to be a normal teenager like my friends. I always feel it's awkward to explain and for others without it to understand that just like a physical disability it affects your whole life. My mother Joanne also developed type 1 diabetes 2 years ago and so has been finding it tough herself but has got experience from helping me with my diabetes management.

I'm not going to lie but my diabetes isn't good, I've just managed to stay out of hospital these past times that I have been to the clinic. I try to motivate myself but as I get back into the swing of things I can not seem to get back on track. I feel very alone as I don't have someone my age to talk to as my friends wouldn't understand and it might make them think I am attention seeking. I don't want to tell my parents as I already put enough stuff on them and so don't want to make it worse.

I am currently in a relationship with a wonderful man named Ryan and he is the love of my life but I can't make him understand and I don't want to put pressure on him to take care of me as I don't want a third parent in that sense.

I don't think there will ever be a day with diabetes that I don't hate it or feel different. I just wish I could cope or that it'd go away.

Chloe Jones
Maldon, United Kingdom

#mystory

February 2007 I had what they thought was a stomach virus, that previous november I had just gotten my braces. After feb, I never really ate anymore..my parents thought I had a eating disorder because all I would do is drink. I lost 45 pounds in 3 months, all my teachers told me that I looked very tired and out of it always. April 1st, 2007 was the day that turned my world upside down. I was getting sick that entire day a few hours after getting sick I started throng up dry blood, my uncle which was EMS thought my appendix may have bursted. Got rushed to the hospital to find out my sugar was way WAY over 600. Since then I have been taking care of my self with insulin shots that I do through an insulin pump. I was a month shy of my 13th birthday. I am now 20 years old going away to college to become a teacher. Diabetes doesnt bring me down..it motivates me more and more to be a healthier. One day there will be a cure we must believe and stay strong!

meghan
brooklyn, NY

Diabetes Does Not Mean You're Going to Die

When I was just two years old I remember being so thirsty I was drinking gallons of water while going pee on the toilet at the same time. At the time, my grandmother (a nurse) urged my mother to take me to the doctor because I was showing signs of diabetes. The doctors took some blood tests and sent me home. A few days later the doctor called my mother and informed her that she needed to rush me to the nearest emergency room. I remember laying on the backseat floor, dizzy, moaning and struggling to breathe with intense chest pain. When I was admitted to the hospital, my blood sugar was over 1000! My parents had no idea what having a type 1 diabetic child would mean and now they had to explain this to their two year old. When I was told I had diabetes, I remember the first thing I asked my mother was, "Mom, if I have diabetes, does that mean I'm gonna die?" After explaining to me that I was in fact not going to die, my mother blamed herself and questioned what she did wrong for her child to be diagnosed with diabetes. Growing up, I struggled accepting the disease, often not taking my blood sugar or refusing to take my shots. Now, after battling with diabetes for 17 long years, I am currently on an insulin pump and my A1C is better than it has ever been. I have graduated with an associate's degree and now I am currently attending MSU. I have diabetes, diabetes doesn't have me! I am just one example that having diabetes does not mean you have to die!

I am diabetic and proud!

Taylor Siebecker
Lansing, MI

A coma that could of killed me

I was 7 at the time, my parents noticed something wrong with me. My dad thought it was Diabetes of some sort (He was right). I went to the doctors to get myself checked up. The doctor told me to go home and drink lemonade. My dad used to go out to sea to make money for the family and he was cleared to come home and see me 24/7 at the right time. Here's where the coma comes in. After a week of missing school i went up to get some clothes. Then all of a sudden i just feel like i'm gonna pass out, i try to make it up the stairs (lucky i made it up but then went into the coma straight after) After i faint my parents take me straight to the hospital. What i can recall from my parents is when i got into the waiting room i was taken into the ER straight away and the Doctor basically told my parents i was done for if i got there 20 seconds later, after 8 and a half days of my parents staying at the John Hunter Hospital hoping i was gonna wake up, i did. Ironic something on the news about chocolate was playing. I kept asking where i was and my Dad turned around and he was shocked i woke up. He told me i was at the John Hunter Hospital with the biggest smile on his face i'd ever seen, 5 minutes after i woke up some guy gets me to do an x-ray. 7 years later here i am at age 14 taking the needles remembering this experience that could of caused me death at any moment. Be sure to question the doctor twice about things ;)

Kai Casey
Newcastle, Australia

Misdiagnosed at 24

When I was 24 I got really sick. I didn't know what was wrong and neither did the doctors. I thought I had food poising from some under-cooked pizza and the doctors couldn't find a reason for me feeling so sick. After I got a little better I noticed that I started losing weight. Like a pound every day for over a month. I was drinking gallons of water a day and peeing constantly. When a coworker told me how sickly I was looking I decided to go to the doctor. After I told the nurse my symptoms she immediately tested my blood sugar which was 324. She said, "yup, you're diabetic." The doctor came in to talk to me and said that I am a Type 2 diabetic and put me on a pill. Needless to say the pill was not enough so he put me on 10 units of insulin a day. This was not enough either. I ended up in the hospital with my first case of DKA (diabetic ketoacidosis) before a different doctor tested me for insulin antibodies and officially declared me a type 1 diabetic in need of both long lasting and short acting insulin.

Pretty soon I was taking up to 8 shots a day to control my sugars and they finally set me up with Medtronic where I officially got my insulin pump. Between first diagnosis and my insulin pump I was hospitalized 8 times for DKA. This is because the first doctor to diagnose me said that I couldn't be a Type 1 because I was an adult and only kids can get that form of diabetes. More and more adults are being diagnosed as Type 1, insulin dependent diabetics. Hopefully others wont have to go through this in the future.

Michelle Leigh
Gilbert, AZ

Re: Living my life with Diabetes

My name is Joey I've had diabetes since 2000 it started out as type 2 and quickly turned into type 1. I check my blood sugar level 4 times or more daily and I have to take between 5 or less insulin shots and I've had to make some dietary changes and etc. I just wish they would hurry up and find a cure for type 1 diabetes I have about cures for other diseases but nothing much about diabetes. I think the bionic pancreas is a good start to help with finding a cure. But I also have other health issues after being diagnosed with diabetes like high cholesterol, high blood pressure, acid reflux, sleep apnea, insomnia, asthma, bronchitis, fatty liver, depression, and etc. I take a lot of medecines for all of that stuff. You have to life your life like you don't have any health problems and/or diabetes. I do everyday.

Joey Stevenson
Leitchfield, KY

Battle of Type 2 Diabetes

My name is Missy ( Short for Melissa) . I was in the happy stage of my life. I had recently married for the 3rd time to my soul mate ( 10 1/2 years now). We had moved to S Florida Hubby was offered a great job. A few years later decided to buy our first home . Everything was falling into place and I was happier than I had ever been. I started feeling tired all the time, thirsty and up multiple times a nite to use the restroom. I suffered with yeast infections , tired of using Monistat and it would come back within a week. My husband suggested I see a doctor. Well that time came for my yearly Pap. I didn't have a doctor yet so while my daughter was having a tooth removed we walked around the area. We came up on a Gynecologist which my husband convinced me to make an appoint so I did. A week later I went for my appointment and was told they couldn't do the Pap cause I was dumping alot of sugar in my urine. She gave me meds for 10 days and after 10 days she checked me and it became another 10 days.. It was all through my body, in my lips and ears, I mean all over inside and out. Really made me wonder why I was always itching. Well I went back to the doctor and was told my sugar was in the 500's ( I cant remember the exact). So I was put on Meds (Metphormin) . Im now on insulin ( Nova-log and Nova-lin) and other oral meds, BP meds, Cholesterol . After over 8 years Im finally seeing some readings below 200. I still have those bad days and I suffer with Diabetic Neuropathy in my right leg and foot. My A1C level was 10.4 and my last visit it went to 8.5 so I have made some progress with the new doctor (first time Ive seen an Endocrinologist) but its a battle. Thanks for allowing me to share my story.

Missy
Manassas, VA

Diagnosed at 13 with Diabetes

I was in middle school, 2001, when my symptoms first began. Fatigue, extreme thirst, sleepiness/drowsiness, and frequent urination were just a few. At the time, I was overweight, about 230 lbs at 5'7''. One night, my grandfather, a type 2 diabetic, decided to check my blood sugar, and to our surprise, it was 643! I remember being sleepy but my parents forced me to drink water and to ride an exercise bike. The next week, I had an appointment to meet with an endocrinologist. At the Endocrinology Center, blood work revealed a high A1C number, and I was diagnosed with type 2 diabetes. A strict diet and 4 pills a day were prescribed to help me manage my type 2. Three months later at my checkup, I had lost over 75 pounds! My A1C had climbed again, and I was then diagnosed as a type 1 diabetic. At the age of 13, I was forced to face a new life with this disease. Blood monitoring, insulin injections, and medications are now a part of my daily life. I am now 21, and I still have my days where I can't get my blood sugar under control. Some days I feel as if I am fighting a losing battle, but fighting this ongoing battle is the only way I can survive! Diabetes affects every aspect of my life.

Thank you for listening to my story!

Hannah
Rienzi, MS

there is always hope

Hi so i'm Alissa,

I'm 19 almost 20 i have been type 1 diabetic since i was 7 years old i have never had stable control of my diabetes all my hba1c tests were never under 8 then i hit my teenage years i refused to do anything with it i was in hospital at least once a month i went through really bad depression until Jan 2013 i found the love of my life he helped me sort out my life we moved in together and i found out i was pregnant well i tried everything to carry my baby but at 16 weeks i lost him/her i was absolutely devastated i thought i was going to loose everything at that time i had been told i have PCOS (Polycystic Ovary Syndrome) and was told that i would never be able to conceive again then went on to my endocrine team for them to tell me that if i did conceive that i wouldnt carry because of my diabetes. after being told that i was wrecked i didnt want to face the world and locked myself away until i found a job again so i start working i was at work and realised i had skipped a period and thought it was to do with diabetes and PCOS missed my second one felt like i was starting to get sick but it was only of a morning so i did a test it came back positive never got my hopes up but complied with my endo gp midwives but still didnt believe i was going to carry this baby but still tried while i was pregnant i got my hba1c down to 6.1 and carried a healthy happy baby girl who came at 38+1 weeks weighing a healthy 8lbs 9oz completely no defects wat so ever like the doctors thought there would be she is almost four months old and is hitting her mile stones earlier then expected so dont give up dont let diabetes run your life you run its life dont let any one tell you no

Alissa Compton
bundaberg west, Australia
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