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Type 1 Diabetes is an autoimmune disease with no prevention or cure. It affects anyone at any age, no matter the circumstances. As the years go on, more and more people are being diagnosed. It's becoming an epidemic. The daily struggles and costs to manage this disease are tremendous. For those with Type 1 Diabetes, one's life is always at risk. This disease also affects everyone in the family.
This video was created with the help of the diabetes community showing others what it's like living with Type 1 Diabetes. No amount of words can describe this difficult, yet confusing disease. But with this, we hope more people can become aware and support our efforts in finding a cure. For those battling Type 1, their families, and loved ones.
My son turned two years old just before his diagnosis September 19,2015. I had been noticing he was drinking liters of water at a time, very frequent utination even threw diapers. He didn't want to eat, cried a lot, wanted to be held/cuddled constantly, just all together was not acting himself.
My mom had mentioned the frequent drinking and urination were signs of diabetes. I did my online research and noticed more and more the symptoms were sounding exactly like my son, so I made a doctors appointment and got seen fairly quickly. The doctor told me he thought my son was fine his assessment to him was normal. I told the doctor I didn't agree and I wanted to verify with a blood test. I explained that I thought he could have diabetes and told him that if the blood test came back fine, ok but I wasn't gonna be comfortable without knowing for sure. He said well I think he's just got a habit of drinking too much but I'll do the test. This was 11am, By 5pm that evening I recieved a phone call from the doctor saying how sorry he was and that I was right. My son was definitely diabetic and that i needed to get him to an ER right away. I called his dad and we went home to meet him. We rushed 45 minutes to Cambridge hospital. We are living in England as we are a military family. Jeremiah was admitted to the A&E at Cambridge university hospital and we were told we had gotten him there just in time as he was starting DKA and we could have potentially lost him had we waited. Jeremiah is now 3 years old we still live in England but will be moving soon to New Mexico USA. As a mother or a parent or a caregiver in general, I urge you to never give up on your instincts. Being persistent in this situation saved my baby boy's life. Watch for signs, google them if you need to, and take action right away.
My story of becoming diabetic is similar, yet different to ones I've read before. I was diagnosed very shortly after my 13th birthday. Shortly before my birthday, I was experiencing the symptoms of a diabetic. I was constantly thirsty, I would be going to the bathroom literally every 20-30 minutes (this made sleeping, being in school, and hanging out with friends very difficult.) I would beg my mom to let me stay home after lunch break so I could have a nap, I was also whiter than a ghost and eating more than I should have while still losing weight. This just added to the complications of becoming a teenager and going through puberty.
It was weird though, I was almost... Excited, and scared at the same time because this was something that made me different than anyone else in my school. It made me special. When my parents heard the news, they came to my school, I got called into the office, and my parents where there with a bag of clothes, just in case I had to go to the hospital. I was fortunate that I didn't have to go to the hospital, but I was very close. For the next three days, I was educated on diabetes along with my parents. How to handle it and deal with it, and setting me up with all the devices I would need to manage it.
It was a huge game changer to everyone in my family, and even with my friends. The teachers in my school were informed of my situation due to me missing those 3 days, and were supportive through the rest of my school years. The only thing I wish they wouldn't have done, was treat me differently and question whether I was able to have a piece of candy, or some food that was brought to class.
Maddox Guice T1D diagnosis story: In October of 2015 a friend of mine had noticed Maddox had went to the restroom at least 6/7 times in 10 minutes, I didn't think anything of it because Maddox drinks a lot of fluids. Over the next week Maddox went to Urgent Care they said it was viral, two days later he was still out of school so I asked my mother if she could take him and have them re check Maddox that a friend said it was a sign of diabetes. On October 29, 2015 Maddox A1C was 10 and his BG was 400. My Mom called me and put the Doctor on the phone and I was told He was Type 1 Diabetic. The Doctor stated the machine only read to 400 she referred Maddox To Scottish Rite Hospital. My friend and I immediately surrounded Maddox with family and prayers and off we went to Atlanta, the ER immediately put him in a room his BG read 700 which was high as the machine read in their ER. They admitted Maddox and by 2:30 am we found out his true reading was 1,000 they told us he shouldn't have been able to walk and should be in a coma. We started praying along with family as his BG came down. Looking back now his symptoms were frequent urination, mood changes, bed wetting, stomach and headaches. This could have been tragic at this point had he not been re checked! Our Scripture is 2 Kings 20:5 & Our Faith in God is Strong! Please have your child tested for any of these symptoms. We are Blessed that this was caught the VERY DAY that it was, a BG over 1,000 & still conscious is a Miracle from God!
Sometimes, if I’m really hungry but not sure what I want to eat, I take a shot and raid the pantry.
A low blood sugar has been used as an excuse to buy snacks.
My favorite middle-of-the-night-low-blood-sugar remedy is a bowl of Fruit Loops.
Most regular (non-diet) sodas taste like poison.
Having to do math every day is a pain in the butt: 1 unit of insulin for every 10 carbohydrates; subtract 100 from the high blood sugar and divide by 30.
“High BS Level” is a double entendre, especially if I’m being particularly crabby.
My relationship with food feels like a secret love affair.
I dream about food sometimes. Willy Wonka dreams.
My dad, also a diabetic, and I used to eat butter-sugar sandwiches.
One time in elementary school I told a kid that my pump was a pager.
I dated my first boyfriend for a month before I told him I had diabetes.
The “Shots” song has a totally different meaning for me.
Speaking of shots, low blood sugars feel like I’m drunk, and high blood sugars feel like I’m incredibly hungover.
When I meet or hear of other people being diabetic, I get excited to know of another member in our special club.
Two of my good friends are nurses, and I used to let them check my blood sugar and give me shots when we were little.
My husband is a saint for putting up with a crazy diabetic wife.
My life really does feel like a roller coaster of highs and lows and in-betweens.
When I’m watching shows like The Walking Dead or Game of Thrones, I often think if I was in this situation, I’d never make it. And it’s a strange feeling, but it also reminds of how lucky I am to be here.
My sweet 2 year old just celebrated Christmas and New Years but we had started to notice he was flooding the bed at night. He seemed to be so thirsty when we picked him up from daycare that he drank a 30 oz Gatorade in the 2 mile trip home. He had gotten so thin, but I had chocked it up to a growth spurt. Visiting my inlaws one evening I was mentioning these things and my Mother in law asked if she could check Drew's blood. First I blew it off, the next time she was more insistent so we checked and it came back HIGH. We called his pediatrician and he assured us it was probably false but come in the next day. We did and his blood sugar was normal. The pediatrician assured us it was just a fluke in the meter but they did a blood panel just in case. 3 days later on a Friday we got a call that we had an appt on Monday at Texas Childrens. We showed up for the appointment and they immediately went to give him a shot, we stopped them and asked what was going on. That was the moment they gave us the diagnosis. Our lives were forever changed. However through this we realized how blessed we were that we found out like we did instead of in the hospital in DKA as most diagnosis happens. See my Father in law is also a T1D and he recognized the signs.
Drew is now 16 years old and thanks to advancement in T1D therapy he has not ever been hospitalized. We are continuing to pray for a cure.
My daughter also had an unquenchable thirst, her neck was stiff, and she had a rash. I thought she had meningitis. I took her to multiple ER's. One actually refused to "waste their time with a rash" and told us to "go see her primary care doctor on Monday." This was Friday. I told my husband that I was going to take her to yet another hospital and he even questioned me. We got to the last one, man was it busy. They triaged her and said she was stable, put her out in the waiting room. Once it was her turn, we went back to a room and surprisingly the doctor walked right in. I can't decide if it was good timing or God's intervention. They did a complete blood work up. She started vomiting and the doctor came back in with a blood glucose monitor. (Needless to say I did not know what it was before this, but now we are all too aware.) We never really saw much of her nurse. Anyway, the monitor gave him an error code three times. The fourth time it told him it was too high to register, meaning it was over 700. (This is when I called my husband and told him to leave work and get up here.) The average blood glucose level is between 80 and 150, anything over 250 and there is a problem that needs to be addressed, anything over 400 and you need to focus completely on getting the blood sugar down, anything over 700 you are in serious danger. He called down to the lab and told them to rush her blood work. He came running into the room and told us that he was calling for a helicopter to transfer her to the children's hospital. She spent 3 days in ICU and 2 weeks on the diabetic floor. Thank God this doctor took it seriously, we were later told if I had just taken her home like we were told to do, she would have died in her sleep.
When my child was 9 months old he got a little cold. The next day he seemed fine. That evening he wet through 4 diapers. Nothing was out of sort except the wetting. The next day he didn't want do anything but lay around. That morning I called the doctor and was told she could not see him and to take him to urgent care when they opened. By the time we got there he was extremely lethargic.They checked him said hold on and left the room. The doc came back in the room seconds later and told me to take my child to the emergency room across the street, a doctor would be waiting. Doctors took my child to the back I heard a doctor scream to a nurse hook this baby up on insulin he's diabetic. I was in shock I looked at the nurse and asked is that my baby they're talking about ??? She said yes. His blood sugar was 1053 they started him on insulin. He spent 10 days in the ICU. I was lucky my child was able to come home. When we got out of ICU and we were released to go home I contacted his pediatric doctor and she told me she would have misdiagnosed my child told me to give him electrolytes (which is full of sugar) and would have killed my child. Needless to say I thanked her for being honest and told her she would no longer be his doctor... fast forward to present my child is now 16 years old. He has not been hospitalized one time in all these sixteen years for his diabetes except for his original diagnosis. My child is my Hero. About 2 years ago my child was also diagnosed with stage 4 Lupus Nephritis. A month after that diagnosis he went blind in one eye. My child is the only known juvenile diabetic to have both type 1 diabetes as well as stage 4 lupus nephritis. Although this is a horrible disease, I know that my child has been touched for a reason.
My son was 7 yrs old and very sick. We didn't know what was wrong. He was getting up a lot during the night to pee, extremely thirsty and hungry, but losing weight also. "Shouldn't he be gaining weight, with how much he is eating", I thought. I knew something more was wrong so I made a doctors appointment for him. When we arrived, they checked his urine for Keytones, suspecting diabetes. Keytones were present and within 30 minutes we were at our local children's hospital (A. I. DuPont). He was in ICU for 4 days with a 855 blood sugar and in DKA. He remained in the hospital for another week while my husband and I went through extensive training and education classes so that we could care for him. His diagnosis changed our world forever. I frequently share T1D symtoms and signs on my Facebook page in list form because I believe if I was aware sooner, I could of got him to the doctors before he got so sick. He is a thriving 9 yr old boy now and is doing great. He plays flag football and baseball. He is on a CGM (continuous glucose monitor) and next will be an insulin pump. This is our "new" normal life. Some days are tough and some days we get things right. His diagnosis has made us closer as a family and forced us to eat healthier. I try to keep in mind that he is still a kid and can have treats and snacks like any other kids, he just needs to take insulin for those snacks and treats. We created a fundraising team, Nix Type One Nation, and last year we raised over $7000.00 for the JDRF one walk. We hope to double that amount this year. We simply want to do anything we can to raise money for research and eventually find a cure in his lifetime. I truly believe that will happen.
my best advice, Know the signs/symptoms of type 1 diabetes.
My son Clint was diagnosed at age 2 with Juvenile Rheumatoid Arthritis so we were used to medical issues. He had frequent flares through out childhood and early teen years. So it wasn't a shock when he woke one morning with a terrible stomach ache and joint pain. He described it as the worst pain he ever felt in his life. We rushed him to the emergency room. It was late August and a week from starting his junior year of high school. He had emergency surgery to
remove his appendix but the doctors were concerned because they found large amounts of sugar spilled in his urine. They checked his blood and found and elevated A1C. However, at that point they believed it was attributed to the trauma. This because cortisol is produced when the body is under stress. So, we were told not to worry about it. However, Clinton was never right after the surgery. He became angry easily, slept constantly, suffered from constipation and headaches and frequently urinated. The amount of water he drank was ridiculous. The pediatrician said he was probably in a flare and didn't seem concerned. Then on Christmas Day we were at my mothers. He hadn't eaten much and he suddenly started yelling at all of us. He was pale and didn't seem himself. My husband and my father are both type 2 diabetics so we tested his sugar. It was almost 300 without food. We came home that night and I planned to take him to the doctor in the am. In the morning he was 430. I was told to take him to the children's hospital two hours away immediately. He was diagnosed on December 26th and spent the next 6 days in the hospital. We were lucky because we got him there early, before any serious issues could arise. Yes he is now on life sustaining insulin but he refuses to be known as a diabetic. He's Clint with diabetes. It's just a part of his life.